Monday

Good evening all:


Keep praying for Noah.  His family is going through the awful process of planning a balloon release at the graveside when Noah goes home.  He is currently fever free, but in need of a transfusion and feeling weak and listless.


Phoebe is not doing well.  Her sodium is not coming down like it should and she's having hallucinations and is feverish.

Josiah is not sleeping well and they are having a very stressful time.

I received this prayer request via email today.  There is no website given, but we can still keep him in our prayers:
Please pray for Benyun Wu
Benyun Wu,67 years old,he is ill now because of lung cancer ,cancer cells diffuse into lymph and vertebra,caused fracture of thoracic vertebra.May God bless him,heal his disease, staunch pain of his body,make his health and mental statusin good condition,and make him accept salvation of the Lord Jesus Christ.

Friday

Good evening all.

Please continue to be in prayer for Noah.  He's really not doing well.

Tripp is nearing the end of his suffering.  Please pray for him to be as comfortable as possible and strength for his mom and family.

Jamie was moved to her new rehab facility today!

Matt & Lorraine are in the Ukraine getting closer to bringing their TWO new kiddos home!

Please keep Jenny in your prayers.  Some of you remember that she is Allie's mom.  She is going through an emotionally trying time and I know she would appreciate being lifted up.

Brayden's botox injection is not working as well as was hoped.  Pray that they can get some answers from the orthopedic surgeon.

Phoebe's family met with the oncologist today and came up with a treatment plan.  Pray for guidance for the doctors.

If you have a prayer request, please leave it here in the comments or send an email to safehavenblog@yahoo.com

Have a blessed night,
Amy

Urgent Prayer Request for Noah

Noah's mom Kate just posted on Facebook:  
Temp 104.9 with meds. Up retching every 30-45night minutes all night. Dr. B is on his way over.


Storm Heaven with prayers for them!


Updated 1:00pm EST:
Temp 105.2, throwing up blood (probably b/c his throat is so irritated from so much retching). CRP (infection marker) which should be under 0.3 is 5.8. Platelets falling pretty fast - 150-something Monday, 129 yesterday, 102 today. Some other labs looking rough as well. Lasix has been tripled, phenergan increased to every 6 hours instead of every 8 hours.

Urgent Prayer Request

Please keep baby Phoebe and her family in your prayers.  She is 2 years old and was diagnosed yesterday with a cancerous brain tumor (AT/RT).  They can use every prayer and ounce of encouragement they can get right now.  


Please also be in prayer for Tripp and his family.  He is not doing well, and things are getting bad quickly.  He has suffered so much, as has his mom.  Please lift them both up tonight.

Thursday Prayer Requests

We have a few prayer requests tonight.


Noah and his family can so use your prayers tonight.  Specific prayer requests from Noah's mom:
Comfort for Noah
Wisdom for Dr. B and all involved
Peace for Jeff and I and the children
For the albumin to do its job and pull off some fluid
Comfort and healing for Mary

Kate is having a full brain and spine MRI on Monday, please be in prayer for good results. Also, the family they helped during a Christmas drive just lost their 16-year-old daughter.  Please pray for them as well.

Pray for Jamie as she is moving to her new facility today.  She also walked 150 feet in rehab yesterday.  God is good!

I'll have a more extensive update tomorrow. 

Have a blessed night!

Amy

The lucky winner! And a few updates

Happy Wednesday!  Thanks for the great comments, they were appreciated  :) Our lucky winner is Erin!

Congratulations!  Your gift code will be arriving shortly.

And now, a few updates...

Continue to keep Jamie in your prayers.  She is working hard to start walking again and she is struggling with some sadness.

Rebekah is still having problems with a cough and the pediatrician didn't really have any answers. She's seeing her cardiologist tomorrow.

Grant and his family are expecting a new little boy!  Keep them in your prayers.

Joshua is loosing a lot of teeth due to osteoporosis of the jaw.  Pray that he does not lose any adult teeth.

Aidan has not been doing well.  Please send them some prayers and encouragement.

Waverly and Oliver's family are on the verge of getting a new home!  There are some wonderful new pictures of them on their blog, check it out and leave them some prayers.

Have a blessed night!

Amy

A few prayer requests

Send some prayers to Joshua.  He’s having more pain and his left eyelid is drooping. 

Aviana is busy working on getting her muscles stronger and sitting more.  She’s doing great!  Give her mom, Jen, some encouragement too.   It’s not always easy trying to figure out what the “right” decisions are, but I think she’s doing a pretty amazing job J

Please pray for Amy.  She is going through a very hard time and is in need of support.

Keep Janet and her family in your thoughts and prayers.  They just lost their sweet furbaby Max after 14 years. 

Say some prayers for Rebekah that her recent coughing is not due to aspiration. 

Continue to keep Noah in your prayers.  He’s having some fluid retention that is causing swelling.  

Don't miss the giveaway on the previous post!  It's open until tomorrow at 8pm EST.

Have a blessed night!

Amy

Monday

Hi all, hope you had a great Monday!  A couple of requests tonight:

Please keep Noah in your prayers.  He has an appointment with his cardiologist on Wednesday to find out what some "off" labs mean.  On a praiseworthy note, it looks like he's rid of the MRSA!!

Please keep sweet Kira in your prayers.  Kira is new to Safe Haven.  Take a few minutes to read her story.

Requests and urgent prayer needs can always be left in the comments or emailed to safehavenblog@yahoo.com.

Until next time,
Amy

A few Sunday requests

Good Sunday to you all!  I have a few more updates/requests today.  If you have a request or know of someone who could use our prayers, please feel free to leave a comment or send an email to safehavenblog@yahoo.com.

Please pray for Joanne.  January 11 will mark one year since she suffered a stroke and she is still working through rehab and regaining her independence.

Noah and his family can really use our prayers.

Please continue to keep Tripp in your prayers.  He has endured so much.  His mom could use some love too!

Keep Jonah in your prayers.  His mom, Patrice, is going to start potty training him soon!!

Some updates, prayer requests and an introduction...

Hi all!  This is my first time contributing to this blog and I'd like to start off by thanking Jen for the opportunity!  My name is Amy, and I will be one of a small team of gals who will be helping Jen keep the blog updated going forward.  A little about me... I'm a married mom of 2 kids  (12 & 10).  I'm also a full-time financial planning assistant for a fully integrated financial holdings company.  But enough about me, let's get to some updates!


Jamie B and her husband Jayson could really use some prayers and encouragement.  Jamie was found unconscious in her garage on December 2 and has been recovering from a traumatic brain injury since then.  In addition to her continued recovery, they are currently having some issues with which type of facility Jamie should be going to and trying to work things out with insurance.  


Ashley is 3 days free of antibiotics for an infection, but there are still a lot of issues and a lot of decisions that need to be made.  Take a moment to leave some encouragement for them.


Keep Aviana in your prayers as she works on sitting and standing.


Brayden is doing well, but both of their vans were in accidents within 2 days of each other, so they could use prayers as they deal with their transportation obstacles.


Brody is making some progress in therapy, and his mom is moving into a new chapter as well.  They can always use encouragement and prayers.


Carly continues to do well and had a really fun Halloween!


Christian's parents have some decisions to make regarding potential surgeries for their little man and could use some prayers.


Please continue to keep Eli in your prayers, he's very sick!


Give praise for Elijah, he's walking, something the doctors said he'd never do!


Emerson just spent her first Christmas at home in 5 years!


Gaines is doing fantastic!  Off oxygen, growing and enjoying life!


Sweet Gracie is raising money for "The Canaries"!  Leave them some prayers and encouragement!


An update from Grant's blog:  "Grant has continued to thrive in his Post Fontan life. He is playing hard and able to keep up with the other kids and as a result, he is also napping better and sleeping more consistently at night than ever before. It is incredible to me.  It has taken me a few months of getting solid REM sleep to not still feel exhausted all of the time, but slowly I am starting to remember what it feels like to not be a walking zombie! "


Continue to pray for Harmonee as she battles against rejection.


Jace's mom updated their page recently: "My lesson learned from 2011 is that you can't predict the future. Well, we all knew that right, but to truly be able to experience an improvement in Jacob's mitochondrial disorder is something we didn't expect. Noone could have predicted that, but it did happen! That is what I will bring with me in to the new year."  Great news!


Please keep Jared's sister, Braylynne, and their entire family in your prayers as they are dealing with the effects of Jared's condition on his sibling.  We sometimes forget that illnesses and conditions effect the entire family and they can always use our prayers and support!


Keep Joshua in your prayers.  He's been having some "off" days.


An update on Josiah's blog: "We have only  5 days til disney. The kids are excited, especially Isaiah. I think this will be a once in a lifetime trip. We will be cramming so many things into a week, i will need to come home and sleep for a week. I am done working now as of this week. Something will come up for me, I just hope soon. I want some changes to happen soon,I want to move, and we really need to so we can accomadate Josiahs needs better. Its getting really hard to carry him up flights of stairs to bed, to the tub, no wheelchair access into my house. Its just really cramped in here with all his medical stuff"  Keep them in your prayers!


Karina's mom could use some encouragement.  Please take a moment to visit and leave her some uplifting words.


Things are very tough for Kate and her family.  Keep them in your prayers and send them some encouragement.


Maddie is doing well, but Brandon is still deployed.  Pray for his safe return SOON!

Noah's mom has posted a recent update worth reading.


Please be sure to let the families know you've stopped by and leave them an uplifting word when you have time.  It seems like a little thing, but it means a lot!  

Additions to the prayer list and urgent prayer requests can be sent to safehavenblog@yahoo.com.  

Have a blessed day!

Amy

Thank you so much.

First I want to say thank you for all of your responses. I really, really appreciate all of the kind words of encouragement. Some of your comments had me in tears, and I heard the Lord's voice in your words. I was getting so behind on updating, I felt bad even trying because it has been so long. I have had offers from some of you to help, and I think I will take you up on it. I want to say thank you to those of you that offered, and tell you I will be in touch with you soon. I also want to address a few comments/questions:

1. There was a suggestion to organize the prayer list by category, those going through the same diagnosis. This would also give those going through the same thing a way to find others that have something in common, and provide a sort of support group. I think this is a fabulous idea, and I will be making those changes soon. Thank you!

2. There was a question about making a list of the prayer requests so you can check them yourself. If you look at the top of the blog, the different lists are across the top, and if you click on them, it will take you right to the list. I used to have them all listed out on the side but it made the blog so long to scroll through, I seperated them into different pages.

3. There was another suggestion to list the requests so that the ones most recently updated will be at the top. I do not know if the pages I am using will allow that, but I will look into it, because that is a great idea. It would allow for ease of knowing who has posted an update.

4. Someone metioned having the comments set to where I do not need to ok them before they are published. The reason I had it set like this is because I was getting a ton of spam. It has seemed to ease up though, so I will change the comments settings. Thanks for this input.

Thanks for all your ideas. You ladies (and guys?) are awesome and I appreciate you. I know God does too. I will be working on some changes and hopefully some updates will start posting soon.

In the meantime, here are some prayer requests that I feel HORRIBLE about not being posted. Please forgive me.



Logan has been listed for a heart transplant. His little heart has too much scarring on it. Please keep him in your prayers, and I have moved his blog button back to the prayer requests list.

I commented on my last update that Jace's blog was gone, and someone left a comment that he is doing so much better that his mom took his page down. Praise Jesus!!! :)

This is Harmonee. She suffers from Biliary Atresia, and had a liver transplant on May 14th. Now, she is having some signs of rejection. Please add her to your prayers!

Thanks again so much, and hope to have some updates soon!!! :)

Monday

PRAISE!

Rosie had her little boy, Gavin, On Wednesday, the 14th. Praise the Lord for a healthy baby and momma!

Pray for Avalon, she is having more setbacks with headaches and increased pressure.

Please check Beckham's blog for some prayers requests for other children.

Brinley has been sick, and fighting fevers, pray for quick healing.

Please pray for Brody, he is having a lot of problems breathing.

Chloe will be having surgery on Thursday (22nd) on her spine, please keep her in your prayers.

Eden's momma is pregnant again. Please keep her and the little on in your prayers. With as many difficulties as she has had before, they need protection and health. I am moving her link to the "pregnancy prayers" category.
__________________________________________________________

I will try and finish the update tomorrow......sorry it's been so long.

Urgent request

Cathy left this request yesterday, please add Kristin to your prayers:

"On March 23rd, she was airlifted to North Memorial Hospital in Minnesota. Kristin had several blood clots in both legs, her kidneys weren't functioning, and she had an infection in her aorta. She was heavily sedated and time was given to allow her to heal on her own.

On Friday, April 1st, Kristin underwent her surgery to have her right leg amputated as well as a portion of her left foot. She doesn't know this has happened to her as she's been sedated since prior to her surgery.

At some point in time this week - it's looking like she will be allowed to wake up. Her doctors will explain to Kristin what has happened - and she will be surrounded by those who love her while they do.

Currently, she is still very much asleep in an effort to control her pain level. She is on direct dialysis (which runs 24/7) and her kidneys were still without much function.

I don't know much about the infection in her heart - but will find out and will keep you posted!"

Saturday

The Shuberts will be traveling to Taiwan tomorrow to finally meet their son! Please be in prayer for them during this time!

Faith is struggling with a lot of pain, please pray for her. Pray for a miracle!

Prayer requests for Gaines: weight gain, and for his lungs to get stronger.

Josiah's mother is getting tested to see if she is a carrier of Menkes, the disease Josiah has been diagnosed with. Please pray that it is negative.

Keep Kate covered in prayers as they are in Houston going through some new treatments.

Pray for Maddie, that her new medicine will help control her seizures.

Jonah has been sick the last few days, please pray for quick healing and that it doesn't go into anything worse.

Lydia's momma requested prayer for a little two month old boy, Brenon. He has a mass on his liver.

This other request was left in the comments:

"This morning (3/26) a 15 month old and his 5 year old brother were shot and killed by their father in Scottsdale, AZ. The father shot himself but is expected to live. He and his wife are going through a divorce and custody battle. I don't know if it is appropriate to add but I'm sure this sweet mother could use prayers on her behalf. The community where they live is heartbroken, as well as the family of these little boys. There are links to the story on www.fox10.com."

A few updates

Sweet Layla Grace went home to be with Jesus early yesterday morning. Please pray for her family during this very difficult time. Fly to Jesus, baby girl.

Please continue to pray for my friend, and baby J. No new updates yet, thanks for the prayers!

This request was left in a comment yesterday, please pray for this boy and his family, especially today as he has surgery:

"I have an urgent prayer request. My best friend's son was just diagnosed with a brain tumor this afternoon and will be undergoing surgery to have it removed tomorrow (Wednesday) morning. He will then have chemotherapy and/or radiation. This will be a long road for them, so please lift them up in prayer and pray for a successful surgery tomorrow."

This is Witt, and prayer was requested for him as well:

"We have a friend who's little boy, Witt has been in the hospital for most of his 16 months of life. He's got a lot of medical problems, but we especially need prayer right now as they're going to put a trach in tomorrow (3/9). Witt's a fighter, a trooper, a true, living testiment to how much God can do. He's got a trememdous family who are begging for huge prayers now. Thank you!!"

EDIT:His trach surgery was postponed and has not been rescheduled yet. Please pray for this family!

Urgent prayer needed again please!

I am again asking prayer for my friend and her little girl, baby J. She is the one with the severe head injury. I received word today that things are not looking well at all for baby J. Please lift her and my friend up in prayer!! Thank you.

Friday

The Shubert's court date is Tuesday, March 9th. Be in prayer for this, as well as the waiting period afterwards. Also pray that their homestudy situation gets resolved quickly!

Emerson had a perfect time at Disneyworld for her Make-A-Wish trip, praise the Lord! Although, now she is back in the hospital fighting another infection. Please pray for healing!

Pray for Kate to recover from the chemo quickly so she can go home soon.

Layla is still hanging on, please remember her and her family!! Don't stop praying for a miracle.

Baby Luke had his heart surgery this week, and everything went great! Please pray for him as he recovers: pray for his pain, and all the effects of surgery.

Dylan will be having a bone marrow biopsy done on March 11th and 12th to check for cancer cells. Please pray for good results from this test: NO cancer!!!

Pray for Noah who is back in the hospital; pray for quick healing!

Pray for Ava as she recovers from surgery on her leg and foot.

Jonah needs prayer for issues with his feet, and feeding problems. Pray for Jonah!

Reagan has been diagnosed with mitochondrial disease; please pray for them as they are still trying to figure out treatment for her.

Veiyah is pretty sick and in the hospital, pray for quick healing!

Abby is also sick in the hospital, pray for healing for her as well.

NEW REQUESTS:

This is Faith; she is in first grade, has just been diagnosed with brain cancer, and has been given 6 months to live. Please pray for her and her family.

This is Aviana; she was hit by a car in July 2009, and suffered a severe brain injury. Please pray for this little one and her family.

URGENT prayer request

Please pray for a friend of mine, and her little girl, baby J. She is two years old, and is in the PICU with a severe head injury. She has severe swelling on the brain and is not doing very well. Please keep my friend and her little one in your prayers!!

Friday

PRAISE:

Bronson, who was just recently added to the prayer list, was in a drowning accident and was in a coma. Praise the Lord, he is awake now and totally healed! Thank you Lord for miracles!

Continue prayers for the Shubert's as their court date for the adoption approaches.

Keep Brinley in your prayers, she has been running fevers all this week.

New fundraiser for Christian!



Continue praying for Eden's eye problems. Pray for healing!

Specific prayer requests for Gaines: for his hamstrings to strengthen, and to conquer sitting on his own. Pray for his body and muscles to get stronger!

Joshua still needs lots of prayers, for his blood pressure and shunt problems.

Kate had her stem cell transplant this week. Please pray for her body to take this treatment well, and also in the next few days when they begin radiation.

Please keep Layla and her family in your prayers, she does not have much time left. Soon she will be with Jesus, unless God chooses to heal her little body. Please pray for this family!!!!

Remember Rebekah as they are still trying to figure out her breathing and tummy issues.

I will finish the update tomorrow asap.

Friday

Urgent news: Prayer vigil being held tonight for Layla. Please visit her blog for more details. Please pray for this precious girl and her parents! Unless God performs a healing miracle on her body, she will be with Jesus soon. Please pray!!!

Continue to pray for the Shubert's during the adoption process, for their son's health, and also for the birth momma during this difficult time for her.

I found the sweetest blog today, while checking on Brayden. It's called Adaptions 4 Kidz. Here's a little description about it from Brayden's mom:

"If you have a little one with limited mobility or extra special needs, this is the blog to seek out and follow for wonderful craft, game, and activity ideas for our little ones. Junior's mom, Heidi, has some amazing ideas that Junior loves to demonstrate for you through his pictures...​he has an infectious smile so even if you aren't interested in the ideas, you should go check out the pics for a smile to brighten your day!"

So sweet, and I thought it was a great resource!

Eden needs prayer for her eyes. She has a visit with the eye doctor coming up, pray for improvement and a good report!

Please pray for Emerson; she has been very sick this week, and is still recovering. Pray that she is well for her Make A Wish Disneyland trip!

James had a chemo treatment this week and is having a rough time. Please pray for him!

Joshua needs prayers as he is having some difficulties recovering from his last hospital stay. Please pray for healing.

Kate has begun her chemo treatments this week for the stem cell transplant. Her kidneys are not functioning at %100, please pray that this improves, and for protection for her during this time.

Please pray for Lilliana's lungs, that they will get better and she can begin to breathe on her own.

Pray for Lindsay, she has a light case of pneumonia.

Rebekah is also having some respiratory issues, please pray for quick healing for her.

Noah is recovering from the croup, please pray for quick healing.

Gavin has the flu, please pray for him.

Abbey is on another round of chemo, remember her.