One last post

To all Safe Haven readers,
I don't know how to say what is on my heart right now. Safe Haven has been such a part of my life for a long time now, and letting it go is hard. But it is time for me to pass the torch and move on. I believe the Lord has used this blog is huge ways, maybe even more than we can understand, and I believe it will only continue to touch many more. The power of prayer is miraculous. Thank you so much for checking in on the prayer requests posted here, and for praying. I am sorry that the last several months this blog has been neglected, but that is soon going to change. I am giving the blog over to my good friend Jen, that I actually met through this blog, and many of you have prayed for her. I thank her publicly for the help she has been lately, and for taking this on. God is moving me on to different things, so I ask for your prayers for that.
I will keep checking on these sweet families, and praying for them daily.
I just wanted to say goodbye, and thanks so much.
Blessings,
Christy

Changes

In January we will have some changes of personnel :)  please be patient with us as we transition. Also please feel free to leave new requests on the comment section or on our facebook page. If you have any suggestions we'd love to hear them :) Also if you have a blog listed and would like it moved to a different section or removed all together, please leave a comment on this page..

thanks so much! I am excited to get Safe Haven up and going again.

Merry Christmas and Happy new year to you all and see you in January!

a few requests...

Please be in prayer for sweet little Maggie, she has been having a very hard time and things aren't looking very good...

Kyle and his family are also in need of some prayers and good wishes..

also please pray for sweet Morgan, her family lost her 5 year old sister March 2010, and now Morgan (4 yrs) is suffering the same disease. She was discharged last week to go home on hospice.. This is the same disease my daughter had and is so aggressive and so rapid, once the symptoms start, its just a matter of time befor they are gone..the link is a FB page, but it is open to anyone..

I will update again later, please let me know if you have any other requests to add.. also be sure to follow us on facebook! thanks and have a blessed weekend!
~Jen

They all have forms of mitochondrial disease~Mitochondria exist in nearly every cell of the human body, producing 90 percent of the energy the body needs to function.  In a person with mitochondrial disease, the mitochondria are failing and cannot convert food and oxygen into life-sustaining energy.  For many, mitochondrial disease is an inherited genetic condition, while for others the body's mitochondria can be affected by other environmental factors.  What is happening with these little ones is that the mitochondria (little power houses) are not getting to where they need to go in the body. This causes respiratory, liver, kidney and other sorts of organ failure. It also makes the person extrememly immune deficient and makes it nearly impossible to fight off infection.. be sure to visit the UMDF.org for more info, there is a faq section..

a few requests...

Please pray for Ashley, she had a liver transplant a while back and it is now sick..

Please pray for Beckhams mom kim, she is expecting a new little girl and was just diagnosed with thyroid cancer.

Please pray for Cal. We lost my daughter to a mitochondrial disease last May, so I speak from experience when I say this is a monster, it robs you of your healthy children so fast..

Emerson and her family could use some prayer right now, She was just given another, not so good, diagnosis..go on over and love on them..

Rebekah is having surgery on Nov. 3, please be in prayer for the doctors wisdom and for her to have a successful surgery..

Please remember sweet little Logan as he is still doing well after his heart transplant last month.

Sorry its been so long..I will try to update with more tomorrow...

also please feel free to leave a comment here or find us on facebook  (button on the side column) with any more requests and/or updates..  

Urgent Request

URGENT REQUEST

Please pray hard for Logan. He is on the transplant list for a heart and been in the hospital again. As of late last night he has been moved into the CVICU in Houston and is not doing very well at all.. please pray for God to cover his little body until a heart can come. Amy has not had time to update his blog (obviously) but as I hear updates I will post on the safe haven Facebook page..pray hard people!

a few requests for now..

Ashley is having a bit of a hard time lately and could use some prayers and warm thoughts..

Audra had an MRI and it came back clear! She is doing PT and re-learning to walk! what wonderful news!

Looks like Beckham is in the hospital with some tummy issues..pray this is resolved soon!

Sweet little JJ has taken a turn and could use prayers..

Josiah has had a rough few days too and needs some prayers and encouragement..

Kate started her first day of kindergarten this week after having a negative pet scan last week..what a blessing!

Waverly and Oliver both had some testing done this week, pray for good results as they come in

Little Faith passed away Aug. 7th after a very valiant fight, please remember her family during this time..

Safe Haven is on facebook now, click on the button and follow..we will also be accepting requests and links on the page, as well as here on the blog.

I would also like to thank Christy for giving me the opportunity to help with this site, someone was so kind and requested prayer for our daughter Ella when she was sick, and the prayers were felt during her illness and her passing. If you ever doubt that it makes a difference, I am here to tell you it does. Ella was never in pain and her passing was like something in a movie, she was asleep and slipped away so peacefully. The showers of prayers for our family offered us peace like we could have never imagined. We were and still are so sad we lost her, but the Lord provides us light in our darkest hours..so please take the time to love on these families posted and for those yet to be posted and feel free to share any new requests and links, because it makes a big difference to the effected families...

Too long....

Wow. I can't believe how long it has been since I have updated this blog. I feel so bad for letting it go this long. I am in the process of getting helpers so we can get this thing going again. A few people commented that they would like to help a while back, but didn't leave email addresses. If you are interested in helping post updates to this blog, leave a comment and let me know. Still looking for partners! :) Hoping to get some sort of update posted soon, and hope that you all have still been checking in on these little ones. Forgive my procrastination, and I hope you all have been having great summers.

Thank you so much.

First I want to say thank you for all of your responses. I really, really appreciate all of the kind words of encouragement. Some of your comments had me in tears, and I heard the Lord's voice in your words. I was getting so behind on updating, I felt bad even trying because it has been so long. I have had offers from some of you to help, and I think I will take you up on it. I want to say thank you to those of you that offered, and tell you I will be in touch with you soon. I also want to address a few comments/questions:

1. There was a suggestion to organize the prayer list by category, those going through the same diagnosis. This would also give those going through the same thing a way to find others that have something in common, and provide a sort of support group. I think this is a fabulous idea, and I will be making those changes soon. Thank you!

2. There was a question about making a list of the prayer requests so you can check them yourself. If you look at the top of the blog, the different lists are across the top, and if you click on them, it will take you right to the list. I used to have them all listed out on the side but it made the blog so long to scroll through, I seperated them into different pages.

3. There was another suggestion to list the requests so that the ones most recently updated will be at the top. I do not know if the pages I am using will allow that, but I will look into it, because that is a great idea. It would allow for ease of knowing who has posted an update.

4. Someone metioned having the comments set to where I do not need to ok them before they are published. The reason I had it set like this is because I was getting a ton of spam. It has seemed to ease up though, so I will change the comments settings. Thanks for this input.

Thanks for all your ideas. You ladies (and guys?) are awesome and I appreciate you. I know God does too. I will be working on some changes and hopefully some updates will start posting soon.

In the meantime, here are some prayer requests that I feel HORRIBLE about not being posted. Please forgive me.



Logan has been listed for a heart transplant. His little heart has too much scarring on it. Please keep him in your prayers, and I have moved his blog button back to the prayer requests list.

I commented on my last update that Jace's blog was gone, and someone left a comment that he is doing so much better that his mom took his page down. Praise Jesus!!! :)

This is Harmonee. She suffers from Biliary Atresia, and had a liver transplant on May 14th. Now, she is having some signs of rejection. Please add her to your prayers!

Thanks again so much, and hope to have some updates soon!!! :)

Here's the deal

I have been terrible at updating this blog lately, and I feel, well, terrible about it. I just wanted to share my heart for a minute today, and hope for some feedback. I think lack of feedback on here has been discouraging to me as well. This blog has grown so much, and I am so happy about that. But, when I sit down to do an update, it takes me anywhere from 3 to 4 hours. And anyone with little kids will understand how difficult that is. Not to mention I also have so much else going on, my blogging has seriously fallen by the wayside. I need some ideas. I want so much to be able to keep up with each and every prayer request on this blog, but it is next to impossible. I am leaning towards just posting new requests, and maybe if some of you guys could let me know if there is something serious going on with someone I can post that too. I don't really know what to do, but I know I want to keep this blog going, somehow. I do have some new requests to post but haven't been able to yet. I hope to be able to sit down and do it today. So if you have any ideas or comments, please, please pass it on. I'm at a loss here.

Tuesday

Here is a partial update, I hope to have the rest up tomorrow.

Avalon will be having shunt surgery this week, be in prayer for her.

Brayden is suffering from allergies, pray that it clears up quickly.

Remember Brody, he has been having seizures. Also they will be leaving for China on the 23rd to try some special treatments, be in prayer for this.

Emerson is in the hospital with another infection. Pray for quick healing.

Faith had an MRI yesterday, please pray for a good report.

Isaiah is in the hospital recovering from surgery, pray for quick healing.

I tried to check on Jace Schweitzer's caring bridge site, and it said it had been deactivated by the author. If anyone knows of an alternate website, can you leave a comment? Thanks!