Prayer Requests

Please pray for Emma.  She has Fanconi Anemia.  There are some folks being extremely cruel to her and her family on their Facebook page and you should pray for them as well as they clearly need it.

Please pray for Joshua.  Both he and his sister Bethany are very ill (terminally) and they both need so many prayers, as does their entire family.

Emerson is very, very sick in the PICU and really needs all the prayers she can get.  Please lift her family up in prayers as well.

Audra and her mom can definitely use your prayers.

Blessings,
Amy

Please Pray

I think it goes without saying, but please pray for all of the little (and big) lives lost today, and for each and every one who was personally effected by the horrible tragedy in Connecticut.

Noah needs a lot of prayers right now.  He is being admitted and it's serious.  Please lift him up.

Prayer Requests & Praises

Joshua has caught the sickness that is going through his family. Please pray that he doesn't get so sick that he will have to be admitted.

Tomorrow, Jamie marks one year since her husband found her unresponsive in the garage.  She has made such amazing progress.  Keep them in your prayers as they struggle with all of the emotions tomorrow will bring.

Emerson has been in-patient and they are working desperately to be able to get her home.  Pray that things will start turning around for her.

Phoebe continues her chemo.  Pray that she is tolerating this latest round well.

Noah will be having a sleep study done. His mom is selling some adorable, hand-sewn items!

Lucy's latest scans came back cancer free!  God is good!

Battley's family got some awesome news this week!!

The Bolte Family recently took on a new addition to the family.   Pray for them as they get into a new routine.

Blessings,
Amy

Brayden earned his wings...

Please be in deep prayer for Brayden's family.  He earned his wings and became an angel on Thursday.  I apologize for the late post, I was out of the country and had no access.  If you have the time, please stop by and lift this family up in prayer.  I know they can use it.

Emerson needs many prayers...

From her mom's most recent Facebook post:

After an end of week meeting with the PICU attending & transplant doctor, the message today is they do not believe Emerson can recover from this. And if she can, they say there's little to no chance of her returning to baseline. My heart is breaking... 

They also said, though, there are no decisions to be made right now. Emerson was not able to wean on the vent today & as such they've decided to stop trying. They'll let her rest through the weekend & see is she's able to show us any sign that she can overcome what ever is going on. If not, there will be decisions to be made next week... for the next 2 days, though, I'm going to try hard to put it out of my mind & concentrate, instead, on just loving her. 

In a new development, Emerson's right arm has swollen to nearly double it's s

ize and is turning black & blue. At the same time, the (very little) urine she's producing is dark orange. Apparently that can be the byproduct of muscle break down & the concern is she may have an infection in the muscle of her right arm. They're checking markers in her blood and urine & have scheduled an MRI for early this evening. It's unclear what exactly could be done about it, but it would certainly bring me some peace to better understand what is happening to her right now...

Beyond all that, I've not forgotten how many times we've received devastating news about Emerson in the past... and how many times she's proven the medical professionals wrong. This time feels different to me, but still I'm not giving up hope. I'm playing Disney piano music in her room & am trying the best I can to stay positive around her. We are in an incredibly difficult place and really appreciate all your prayers - if we storm the heavens & if He hears, maybe just maybe He'll let her stay with me a little longer... Thank you.

URGENT - Prayers needed for Emerson

Emerson is in urgent need of prayer. From her mom's Facebook update 3 hours ago:

Blood gases continue to look poor, base deficit is high (indicating a worsening metabolic acidosis), lactate is increasing. Emerson is very sick. The decision was made to take her to the OR stat to remove her line & look for new, temporary access. There is significant concern they won't find anything & cardiology is on standby to come in for a venous cut down, balloon placement, &/or creative wiring, as indicated, to achieve access. The team believes if they don't take her soon we'll lose our window to safely get her through surgery. She'll return to the room intubated & remain that way until gases improve and things are better under control. The vent will take away her work of breathing & hopefully give her more energy to fight this infection. The million dollar question now is, where is it all coming from? If it's a line infection Emerson has a chance at clearing it. If it's seeding from a deteriorating bowel there's no hope. I've had lengthy conversations with everyone here - transplant, PICU, surgery, etc. We are in a potentially difficult spot & are taking this one decision at a time. I've formally enacted a DNR for chest compressions & cardio electric shock...

Please keep them all in your prayers.

Josiah

Josiah went to Heaven this evening around 7:30pm. Please lift this family up in prayer as they mourn the unimaginably heavy loss of their child.


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Prayers Needed

Josiah only has a few days left on this earth.  Please keep him and his family in your prayers.  If you can leave them a kind word, I know they would appreciate it.

Please pray for good scans for Joshua C.

Joshua P. can use a lot of prayers as well.

Urgent Prayers Needed - Joshua

Joshua has relapsed with his 3rd bout of Rhabdomyosarcoma.  He's only 6½ years old.  Please lift him up in prayer along with his family.

Blessings,
Amy 

More prayers needed

Noah's mom, Kate, posted the following update on Facebook just a few minutes ago.  Please lift them up in prayer:

Well, rats. I really totally expected this echo to be a non-event so to speak . . . but it wasn't. Noah's heart function is decreasing and his heart is enlarged. This was checked and rechecked, and both the echo and the EKG showed the same results.

I hate this.

We'll be talking to our cardiologist again this afternoon as he wanted time to think and to talk to a couple of Noah's other doctors. We are VERY much backed up against a wall here as Noah can't have any oral heart medicines and the IV ones are dangerous for home use. Right off the bat, Dr. R feels like trying to treat Noah's heart with IV meds could actually cause harm instead of treating it. Noah just has SO MUCH going on and his balance is so fragile, and when you add in the dynamic of IV meds only, then things just seem to get impossible sometimes.

Brayden and family are moving to Washington on Monday.  They are requesting prayers for safe travels and the avoidance of hospitals along the way!

Joshua has been hit hard with a bug that's been running through the family and this is very dangerous for him. The family is asking for prayers that Joshua will get over this illness swiftly and without any sign of further decline as a result of having been sick.

Blessings,
Amy